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Author Topic: I hope I'm jumping the Gun!  (Read 55603 times)
Steve Pyro
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« Reply #105 on: August 19, 2016, 11:46:16 am »

Great news Tom.
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Steve East Anglian cobras

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« Reply #106 on: September 12, 2016, 07:13:18 pm »

All the best Tom.
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« Reply #107 on: November 09, 2016, 01:50:22 am »

Hi Guys,

Time for another update.  Pretty good news I think.

I've just finished a round of treatment.  Sadly I screwed up prior to getting the treatment.  I had some Jabs before going away.  But when I told the CNS she said I would need to leave 14 days between the Jabs and my treatment.  So that meant I could just fit the treatment in before my holiday.  Not ideal as I tend to be in a bit of discomforts after the treatment and it takes a week to fully recover. (That is for my trips to the loo to be less frequent and not so uncomfortable.)  When I went for the second round of treatment it seems that the white cell count in my Urine was a little high so may be I had an infection.   (She gave me some antibiotics in case things got worse while I was away.) 

So we decided to wait until I returned from my holiday before finishing the treatment. 

Just before i went away I popped in to see the nurse at my local surgery to get things checked and it turned out any infection had cleared up on it's own.

So I've now finished this round of treatment and it's a year since my op.   I'm due to go for another cystoscopy in March and then more treatment in the May time frame.   I've now moved on to treatment every six months and not every three months.   

Add to that if all goes well I only have two more years of treatment.

I'm feeling cautiously optimistic.

T
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« Reply #108 on: November 09, 2016, 03:02:01 pm »

Where's the Like button on this forum??

Nice one Tom... :-)
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Martini...LB
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« Reply #109 on: November 09, 2016, 05:32:52 pm »

Brightened my day... you must feel pretty good too  Grin

Thanks for the update Tom, so we should see you in June along with the Canadian...

>Martini...LB
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« Reply #110 on: November 11, 2016, 01:22:45 am »

Tom,

+1 for day brightening. Good news and headed in the right direction.

Mark
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« Reply #111 on: November 15, 2016, 10:00:24 am »

Great to hear some good news hopefully the recovery/treatment continues on the positive path !
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« Reply #112 on: November 15, 2016, 10:02:31 am »

Tom,

Yes, excellent news.

So no more Carry on Nurse?

A
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« Reply #113 on: November 21, 2016, 12:38:59 pm »

Tom,

Yes, excellent news.

So no more Carry on Nurse?

A

Sadly not.  I will be getting the treatments every six  months for the next couple of year and while I'm still clear it will got to Annual checkups for another 15 to 20 years.

On a slightly more amusing track.  Last time I went the Nurse asked Is it ok if I uncover you now. My replay was "Well you not going to be able to do much if you don't".  Why should I worry any way it nothing shee hasn't seen before.

T.
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« Reply #114 on: March 30, 2017, 06:28:08 pm »

Hi,

Well it had to happen!! 

I went for a routine cystoscopy to check on my progress. Where the tumour was removed the area was a little red.  The Consultant would not had been so cautious if other parts were inflamed he would nat have been bothered. So the consultant wants to take a biopsy to check that it's not a reoccurrence. 

So it's just the wrong time.  It won't stop me going to France in June but it may mean I have to leave for France later than I normally would and I'll have to rush back for my next round of treatment after the race. 

It could well disrupt my plans to go to Spa too. 

So although it's not major set back so far it it is a bit of a bummer.

<sigh>

It's a real bummer as I can't plan anything till I get the results of the Biopsy.  It's a real pain in the arse and disruptive. 



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mgmark
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« Reply #115 on: March 31, 2017, 10:36:14 pm »

Fingers crossed for you mate on all counts.

MG Mark
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« Reply #116 on: April 01, 2017, 12:32:37 pm »

Cheers Mark.   
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« Reply #117 on: April 05, 2017, 12:18:21 am »

All the best Tom
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Doris
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« Reply #118 on: April 05, 2017, 10:15:21 pm »

Sigh indeed.

Fingers crossed.

Dx
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« Reply #119 on: April 05, 2017, 10:33:52 pm »

Crap !
Hope it all works out well ...
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